Monday, May 18, 2009

May 18, 2009

Johnny had a check up today. He was supposed to get bloocd work and brain chemo. Last week he had the same schedule but because his platlets were low, they have him blood instead but no chemo.

Today's check up went OK. They had to give him blood again but they did give him chemo after the blood transfusion. Last week he said he got two units of blood. I haven't heard how much he got this week.

The chemo seems to have made him pretty weak this afternoon. He is walking but very slow and very small steps. This is the first chemo in almost two weeks so we weren't sure what to expect.

John stays pretty tired. He gets up and walks outside to the patio and then back inside to watch the Yankees. If he sits for very long in one place he will fall asleep. His speech is sluring and his memory is not too good. Gets confused very easily. Loses track of time. Last week he mentioned that he had not gotten any chemo but his hair seems to be falling out anyway. He was remembering his appointment last Monday when he did got get any chemo, but he has had several doses of chemo in both his blood and brain.

He seems normal when he is watching the Yankees, but he is not nearly as loud or upset and he used to be when someone made a mistake. I believe he is starting to get depressed. The seriousness of his disease is beginning to set in. I think for a long time he didn't really admit to himself how sick he is.

Some days John is stronger than others, but overall we haven't seen any real improvement. Today thankfully he did get a dose of chemo and he will get another on Thursday. Hopefully we will begin to seem some positive changes.

His hair is starting to fall out. Not real noticeable yet, but it probably won't be long before its gone again. Not much else to talk about here.

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